In Reply to: Re: sarcoma alliance intersting posts thread posted by joe on July 11, 2008 at 00:08:00:
>>>>>>How does surgery go?
they remove lots of stuff. I hope they remove everything, and taht they'res not stuff they can't (its worrying more if they cant)
>>>>>> You do the surgery and then they give you chemo as well right?
3 more rounds of chemo they say, post operation, but that's very distant now.
>>>>>> And then hopefully its gone and you never have to deal with it again (ok so that is a big hopefully).
doctor said it's the only possible way . apparently the chemo has slowed it down and shrunk it to some degree, but the chemo is very strong and toxic so they can only do say 9 in your entire lifetime.
>>>>>> Do they literally take everything out?
yes.
>>>>>>Can they replace all of it?
i don't know what they put in its place, well, an artificial diaphragm, the rest is whatever their science says to do.
>>>>>> Does that mean the Chemo hasn't been successful?
I have never sat down with a doctor for a 'chemo overview' session. After the 2nd chemo he was very pleased because it was working (chemo works on only 20% of patients with sarcoma), but i learn that it's spread to heart, lymph, diaphargm. I don't know when it spread and exactly how many tumors I have or any of that information.
>>>>>>Are you happy about this? I know it must be frightening, but it also is more hopeful that anything you have been doing before.
this doctor never gave me a prognosis, because when I transferred in, we both knew KonKuk had told me 6 months to a year, incurable, no possibility of surgery because of location. And, now, finally, a prognosis comes out, that this surgery will create a small possibility of a cure. Now, it's scary because in honesty it's just creating a probability of curing, and there are so many variables which the surgeons will see when they open me up there's no guarantee they can even give me just this possibility.
>>>>>>When will they do the surgery?
early november pre-qualificatory testing
late november do the surgery