In Reply to: Re: treatment plan for pleural sarcoma posted by Jon on July 11, 2008 at 09:58:44:
Jon,
I agree, the sarcomaalliance.org site can teach me a lot, as there is lots of personal experience on there.
Meeting sarcoma patients and just listening is another way.
I've met 2 sarcoma patients personally at SamSung medical center, one 32 years old the other 25. The former lost a lung and is under his 3rd recurrence, the latter lost an eye and it's moved into his brain and he's doing like major fucking chemo for 8 straight days, he says he's had no energy for months.
In any case, extrapleural pneumonectomy and pleurectomy are used, if not to stop the spread of the monster, then to handle recurrent pleural effusions. Because of my symptoms which I've been through before, I've got another pleural effusion and the lung space is filling with excessive fluidblood which needs to be drained. I've read this is a recurring problem with sarcomas of the pleura. But pleural effusions is another topic.
It's gonna be hard to get outta this one scott free.
> >On a different topic, I recall hearing that a "mother" tumor may send some sort of chemical
> >signals (hormonal?) that might cause satellite tumors to not grow.
Sarcoma, today, seems like Cancer II, the sequel.